R438-15-15. Confidentiality and Related Information

  (1) The Department initially releases test results to the institution of birth for first specimens and to the medical home/practitioner, as noted on the Newborn Screening form, for the second specimen.

  (2) The Department notifies the medical home/practitioner noted on the Newborn Screening form as provided in Section R438-15-10(1) of any results that require follow up.

  (3) The Department releases information to a medical home/practitioner or other health practitioner on a need to know basis. Release may be orally, by a hard copy of results or available electronically by authorized access.

  (4) Upon request of the parent or guardian, the Department may release results as directed in the release.

  (5) All requests for test results or records are governed by Utah Code Title 26, Chapter 3.

  (6) The Department may release information in summary, statistical, or other forms that do not identify particular individuals.

  (7) A testing laboratory that analyzes newborn screening samples for the Department may not release information or samples without the Department's express written direction.