R398-2-5. Information to Parents and Primary Care Providers

  (1) Institutions or persons primarily responsible for births shall provide information about newborn hearing screening to parents and primary care providers of infants. This shall include:

  (a) information, which shall be available to parents at the time of birth, about the purpose of newborn hearing screening, the procedures used for screening, the benefits of newborn hearing screening;

  (b) whether each live birth was screened prior to discharge from the institution;

  (c) the results of the completed newborn hearing screening procedure;

  (d) what follow-up screening procedures, if any, are recommended and where those procedures can be obtained; and

  (e) cytomegalovirus testing when appropriate.

  (2) For infants who require additional procedures to complete the screening after being discharged from the birthing institution, the institution shall provide parents and the primary care providers with written notice about the availability and importance of the additional screening procedures. For infants who do not complete additional hearing screening procedures, the institution shall send a second written notice to the parents and the primary care provider.

  (3) For infants who do not pass the complete newborn hearing screening procedure, the institution or the provider who completes the newborn hearing screening procedure shall provide the parents and the primary care provider with written notice about the results of the screening, recommended diagnostic procedures, where those procedures can be obtained, and resources available for infants and toddlers who are deaf or hard of hearing.

  (4) For infants who need additional procedures to complete the screening due to a missed test, inconclusive results, or a failure to pass, and who do not return for the needed newborn hearing screening procedures before 14 days of age, or for infants who are "lost to follow-up," the institution or the person in attendance at birth shall make reasonable efforts to locate the parents and inform them of the need for testing. To be considered a reasonable effort, the institution must have documentation of at least two attempts to contact the infant's parents by mail or phone, and at least one attempt to contact the infant's primary care provider. If necessary, the institution must use information available from its own records, adoption agencies, and the infant's primary care provider. Contact with the parent may be made by mail, email, telephone, text, primary care provider, or public health worker.