R438-15-3. Newborn Screening Advisory Committee

  (1) Newborn Screening Advisory Committee shall be composed of at least 9 members as follows:

  (a) an individual with an advanced degree (MS/PhD/MD) in genetics or other relevant field, who will serve as Chair;

  (b) a representative from the Utah Hospital Association;

  (c) a community pediatrician;

  (d) the Director of the Division of Disease Control and Prevention;

  (e) an advocate or a consumer of a newborn screening services;

  (f) clinical consultants for the Newborn Screening program;

  (g) a representative from the Utah Public Health Laboratory

  (h) a representative from the Newborn Screening Follow-up Program;

  (i) a representative from the research community with knowledge about disorders considered for future addition to the newborn screening panel.

  (2) The Department Executive Director shall approve committee membership with counsel from the advisory committee.

  (3) The term of committee members shall be four years;

  (a) members may serve up to three additional terms as requested;

  (b) if a vacancy occurs in the committee membership for any reason, a replacement shall be appointed for the unexpired term in the same manner as the original appointment;

  (c) a majority of the committee constitutes a quorum at any meeting. If a quorum is present, the action of the majority of members shall be the action of the advisory committee.

  (4) The committee shall:

  (a) advise the Department on policy issues related to newborn screening services;

  (b) provide guidance to programs and functions within the Department having to do with newborn screening services and

  (c) evaluate potential tests that could be added to newborn or population screening and make recommendations to the Department.