R384-300-1. Purpose Statement

  (1) The Parkinson's Disease Reporting Rule is adopted under authority of sections 26-1-30 and 26-5-3.

  (2) Parkinson's Disease (PD) is a common neurodegenerative disease that affects one in 100 persons over the age of 65 years. PD is a progressive, ultimately fatal condition, which may be more common in Utah than in other states. The growth rate of the over-65 segment of the population in Utah is more than 30%. The purpose of the Utah Parkinson's Disease Registry (Registry) is to develop a central database of accurate historical and current information for research and public health purposes. The Parkinson's Disease Reporting Rule will provide for screening and collection of patient data that may be useful in detecting the incidence and possible risk factors concerning PD and related movement disorders. The information gained will help increase understanding of this disease and aid in planning for early diagnosis, developing health education for patients and providers, and providing correct medical or surgical therapy health requirements.

  (3) Parkinson's Disease records are managed by the Parkinson's Disease Registry at the University of Utah on behalf of the Utah Department of Health. This Parkinson's Disease Reporting Rule is adopted to specify the reporting requirements for cases of Parkinson's Disease to the Registry. The Utah Department of Health retains ownership and all rights to the records in the Registry.