No. 37435 (5-year Review): Rule R436-17. Review and Approval of Research Requests

DAR File No.: 37435
Filed: 03/21/2013 11:56:58 AM

NOTICE OF REVIEW AND STATEMENT OF CONTINUATION

Concise explanation of the particular statutory provisions under which the rule is enacted and how these provisions authorize or require the rule:

Section 26-2-3 authorizes the State Registrar to collect statistics and Section 26-2-22 allows the State Registrar to provide data from the medical section of the birth and death certificates for research purposes. However, neither section of statute outlines a process or procedure for submission, review and approval of research requests.

Summary of written comments received during and since the last five-year review of the rule from interested persons supporting or opposing the rule:

No written comments have been received.

Reasoned justification for continuation of the rule, including reasons why the agency disagrees with comments in opposition to the rule, if any:

This rule outlines the process for submission, review, and approval of data requests. The process for requests seeking non-identifying data is outlined as simply Registrar approval and collection of fees for the time spent compiling the data. For research requests seeking identifying information, a higher standard is outlined. The rule also clarifies that data requests are limited to research purposes and that administrative functions are not governed by this rule. This rule needs to continue so that data requests to the office meet a minimum standard regarding data quality and confidentiality and that requests are limited to public health and medical research. Finally, without the rule, the Office of Vital Records and Statistics would not be able to charge a fee for custom data compilations.

The full text of this rule may be inspected, during regular business hours, at the Division of Administrative Rules, or at:

Health
Center for Health Data, Vital Records and Statistics
CANNON HEALTH BLDG
288 N 1460 W
SALT LAKE CITY, UT 84116-3231

Direct questions regarding this rule to:

• Janice Houston at the above address, by phone at 801-538-6262, by FAX at 801-538-7012, or by Internet E-mail at [e-mail]
• Rex Olsen at the above address, by phone at 801-538-9498, by FAX at 801-536-0940, or by Internet E-mail at [e-mail]

Authorized by:

Janice Houston, Director

Effective:

03/21/2013

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